Please Help Me

Hi, I am Ayub Khan from Kuala Lumpur, Malaysia age 45 working as a despatch. My purpose of setting up this blog is to send out an appeal to whoever is reading this for HELP to save my 13 years old daughter Nur Aqueelah whom I loved much for an urgent surgery for Thoracic Outlet Syndrome.

This is the story of what happened and why I am in desperation seeking financial HELP openly with much humility.

On 5^th Oct 2009 my daughter Nur Aqueelah who was once a very active girl in school participating in Karate, Swimming, and tournaments has become her past after an unexpected accident happened when she was pushed down from this stair case (above) in her school’s surau. 
Never in my wildest dream had I expected the fall could cause her a dramatic future of her life due to the negligence of medical doctor, which was reported in the local prime time national news in TV3


This is how it all happened…………..and the series of events that led her to her present condition of her hand and life that has even cause her losing her memory.  

I am seeking financial help in order to receive treatment for my daughter, Aqeelah, in India this coming November 2011. I have sought help from various doctors in Kuala Lumpur:- from Hospital University Kebangsaan Malaysia, General Hospital Kuala Lumpur, University Hospital Malaysia and Assunta Hospital and few private hospitals to receive proper treatment for my daughter’s hand which had become gangrenous.  
Over a 1 week period, 3 operations were performed in a prestigious hospital in Ampang, Kuala Lumpur.  The result was gangrene in her left hand and we have lost faith on that hospital which is suppose to be the best hospital in Kuala Lumpur, Malaysia.

The fall did not seem serious at first, but later she complained of numbness and a burning sensation in her hand.  She was crying and complaining about the pain in her hand. We took her to a clinic and they prescribed medicine for the pain.  The medicine did not help so we took her to a private hospital where they did an x-ray. No fracture was found and they also gave her more medicine. 
I was still not satisfied, so I took her to another hospital.  CT scan was performed, and they found a blood clot in her forearm.  An operation was done to remove the clot, but there were further complications. There was no pulse in her arm so they performed a second operation. It was after the second operation that the gangrene first appeared.

The blood was still not flowing, as it should so they decided to put in a stent (an artificial 'tube'). During this third operation, Aqeelah suffered a stroke. She was in ICU for 8 days; she was unable to eat, walk, speak or see properly and her behavior became childlike.  At this point a doctor recommended we amputate her hand to stop the gangrene from spreading. We were loath to do this and, therefore, sought alternative treatment.

Upon discharge from the hospital, 22 days later, she was still unable to walk and her speech was still impaired.  As a last resort to save her hand from the gangrene, we gave her treatment in a hyperbaric chamber (below) in Ampwalk Mall Clinic. After 5 treatments, she was able to walk, but she still had behavior problems.  The treatment arrested the gangrene, but for full recovery the doctor prescribed hyperbaric treatment everyday.  Unfortunately, we could only afford to send her for treatment 3 times a week and completed 40 sessions in all. Her speech and motor skills improved, and her behavior somewhat improved as well.  The doctor advised us to do another 40 sessions, but we could not afford this either.

Our next option was to seek treatment in India. Further scans were done to discover why the circulation in her forearm was impeded and the gangrene set in. An MRI was also done to see why she couldn’t focus her eyes; they prescribed medicine for this condition. In the doctor’s opinion, amputation of the thumb and fingers was necessary, and he quoted the cost as INR 350k The doctor suggested a return visit to India for further treatment.

We couldn’t afford the cost in India, so we returned to Malaysia to have the operation done.  In K.L. we consulted a specialist who completed the operation.  She had half of her thumb, index finger, and middle finger removed, as well as the tips of her ring and baby finger. She is recovering nicely, but now needs reconstruction surgery and cost about RM 60,000 to 80,000 in Pantai Hospital.

As mentioned before, we are not in a financial position to give our daughter the required treatment.  Of course, as loving parents, we are heartsick about our own inability to help our daughter receive the best treatment available.  We all pray that funds, either through donation from family, friends or compassionate strangers will help us realize the best treatment and result for our dear child.

Here is a brief summary of the expenses we have incurred so far:

1^st Treatment:  hospital in Ampang – RM 54,000

2^nd Treatment: clinic Ibrahim in AmpWalk Mall – RM 16,000 ( tel : 603-21632469 )
        ( Hyperbaric Chamber treatment )

3^rd Treatment:  leach and acupuncture treatment in Pandan – RM 1,600

4^th Treatment: further medical examination-RM 3,500

5^th Treatment: eye check-up in Ampang Puteri  hospital – RM 600

6^th Treatment:  overall previous treatment in India and travel costs – RM 16,000

My financial resources have been exhausted, so we are now hoping for donations of up to  RM 250,000 in order to go back to hospital for follow up treatment to remove the stent on her arm a do bypass surgery and also another surgery to reconstruct her fingers and thumb which were partially amputated in K.L. Some doctors recommended to go to Singapore ( Mount Elizabeth Hospital ) because they have the best solutions for her thumb transplant surgery.So, I am in midst of preparing for the expanses and its worries me as well, and how much would be cost still puzzle to me.

I have no choice that I have got to sell my house which we are currently staying, so that, I can pay up my debts with people whom I borrowed for buying medicines for my daughter and others expenses that occurred. Nevertheless, I still owed the bank on the property, which is worrying me often. Below is the add on the paper and bank statement. I cannot afford to purchase medicine and medication for my daughter.

My Appeal

My daughter need urgent surgery for Thorasic Oulet Syndrome whereby the cost of operation we cannot afford for her to go ahead.

Why? Because so many surgery to take place;

1) Need to do brain surgery due to infraction on cerebellum and cerebral palsy (that’s why she is becoming childlike if see on her behavior) to remove blood clot due to stroke in her brain.

2) To reconstruct her hand by cutting one of her toe and transplant on her index thumb finger.

3) Surgery on her skin (hand) engraving to remove the blackish spot of gangrene. (dead tissues)

4) Surgery on her eye for better vision.

5) Plastic surgery on the three fingers.

6) Need to remove the stent which was implanted on her arm and do by pass without cutting the rib (TOS) Thoracic Outlet Syndrome which is urgent now.

 

Total cost estimated above RM 250,000.

My humble appeal with humility to the noble and kind hearted to help us with your generous contribution to save my daughter and for her future to live well. Any amount will made a great different, even its $10. I am praying and doing everything I can to reach out to the world with my humble appeal for any generous contribution to give back the life to my daughter whom I loved much.  

You may call me Ayub Khan at +6013-3106262 or
You can bank into my Maybank account 114301491750 (Ayub Khan Abdul Majid)
Paypal account:  a_khan313@yahoo.com

I would be very grateful and appreciate if some one could help me during this needy time and my situation is helpless. Hope Allah bless every single dollar donated and with this will gives me a guide to achieve my aim to heal my daughter’s hand and her brain to make her come back (recovery) after the stroke and as well for her eye which her vision is blur now.

Thank You and Wassalam.

May the ALLAH Bless Your Generosity.

Ayub Khan Abdul Majid

+6013-310 6262
Maybank account:  114301491750
Paypal account:  a_khan313@yahoo.com

Her condition during discharge from the hospital :

1 ) She not able to walk alone – on wheel chair ( imbalance, need our support to toilet and so forth )

2 ) Behavior have changed to 6 year old kid due to impacted the brain “damaged”

3 ) Always talk to same words ( repeated )

4 ) Cannot open her eyes , eye ball not in the positioning and unable to focus the object and blur in vision.

We took her to Hyperbaric Chamber Treatment after discharged fm hospital on our own accord.

Follow up treatment : Hyperbaric Chamber for the brain in Ampwalk Ampang
Per session Rm 500 x 40 days( session ) = Rm 20,000.

This is after 2nd operation photo, founds whereby the pulse ( nadi ) was not there after the 1^st operation. ( 1^st mistake identified )

She couldn’t stand the pain and cry the whole night

 

The colour of the hand changing, was known due to no blood and oxygen flow into her fingers and started becoming black which called early stage of gangrene.

 

To reconstruct her hand estimated about RM 55- 75k.

quotation available from the hospital

The story behind of the massacre of the hospitals and the trauma that we faced are unforgettable memories

Name : Nur Aqeelah Bte Ayub Khan
Age : 11 years –( 2009 )
Weight : 53 kg
School : Taman Melawati, Darjah 5
Active in sports : Karate , School tournament, Swimming and etc

She fell at surau stair case of the school due to people push her down and she suffered some pain, numbness , burning sensation and irritation after consulted few doctors before we went to the 2nd Private Hospitals

Fell on 5th and 6th Oct 2009, went to normal clinic, a GP Doctor and gave some medicine. She claim only have pain on her hand and the pain was still persist after many medicines.

1st Private Hospital – out patient attention

On 9th Oct, went to 1st Private Hospital and had taken x-ray and the doctor confirmed nothing was broken to her arm / hand and the orthopedic doctor just gave her medicine for 10 days and requested to come back again.

On 13th Oct 2009, went back to the 1st Private Hospital again, and we found the orthopedic doctor was on leave and was referred to another doctor on that day. The doctor examined her hand and was given stronger pain killer but he said if still have the pain it would better get warded in another hospital whom she maybe needed to refer to a vascular surgeon and currently this hospital does not have any that kind of surgeon. She keep on complaining the same trend of pain but the doctor didn't warded her because request me to get warded to different hospital because he said she needs a vascular surgeon attention.

2nd Private Hospital

Day 1.
So, we went to another Private Hospital on 14th Oct which very well known and the best hospital in the city.

On 14th Oct : Doctor have taken blood samples, ECG, and also had taken CT scan and the hand was Ok, she can turn and grip.

14th Oct - Surgery was done and removed the blood clot and then after 1 ½ hour of the surgery doctor came to the ward to check her hand and found there was NO PULSE on her hand.
Doctor rush back to operation theater and did another operation on her hand again.

Day 2
15h Oct - Doctor was monitoring her hand temperature and we had taken a picture on her hand while she was awake.

Day 3
16th Oct - Doctor said she needs to undergo another surgery at her upper limb because she was having a Thoracic Outlet Syndrome ( TOS ) which she was born with it. And doctor advised that she needed to put a stent for better blood flow from main artery.
She was suffering with very severe pain on that day and crying for help and we couldn’t stand her cry.
At 6:20pm she went for surgery and the doctor have implant the stent on her arm and I was relived the she would be ok from now onwards. Then more worsen to foresee to happen !…

Symptom after the surgery;

- Her wrist was swollen after the surgery

Day 4
17th Oct 2009, her hand turned into more blackish and spread all over of hand and she didn’t wake up at all.
Called the doctor and he said normally will take 24 or 48 hrs to wake up but we foresee she had abnormal
movement ( like fits ) but she couldn't talk or open her eyes. She sent signal by hitting the bed none stop the whole day and we don’t know why until Monday 19th Oct, then we know why and funny part the doctor also don’t know why she hitting the bed ( fits ).

Day 5
18th Oct her hand getting worsen buy turning to blackish and she couldn’t wake up from anastatic drowsiness.

Day 6
19th Oct - she didn't open her eyes or talk but her right leg have abnormal movement but her hand was getting colder.
- She was sent to do MRI scan in the morning and later in the afternoon was announced that she had a stroke in brain and she went to coma for 8 days and was warded in ICU.
Her finger tips become worsen and pronounced " gangrene ".

25th Oct 2009 - She able to say a few words only but she couldn't open her eyes.

26th Oct 2009  - Went for mouth therapy for 2 days

29th Oct 2009 - Went for physiotherapy 2 times a day in hospital until 4th Nov.

4th Nov 2009 - She was discharged on doctor's will with the condition of her as per below losing her memory;

Need your support -2011

She needs above RM65-75K for her operation in india, whereas in Kuala Lumpur is very expensive and it is above RM150K.

1 ) Needs to do surgery on her brain "remove blood cloth" due to stroke in brain
( behaviour changed )
2 ) Need to do eye surgery ( one eye only )

3 ) Need to do reconstruct her hand ( plastic surgery )

Hoping your goodwill to sponsor and support her for her medical treatment thus will make her happy and speedy recovery.

Pls support my daughter for recovery.

Thanks
Ayub

May update

This how my hand look today.

Aqeelah says:

This is how myself today and I can't open my left eyes well and I can't see well too and all my fingers short due to amputed recently because of gangerene.

I can't go for swimming, karate or any sports now but going to school.

Aqeelah - Once a upon time where she used to be healthy young kid.

This picture was taken before the operation as you can see her eyes was OK .. Today, her one eye is blur vision.
Today, she need fund around RM 70 -RM 80K to do plastic surgery ( reconstruct ) for all the five fingers and also her one of the eyes sight vision is blur need to put on a spectical glass.
She is now going to school eversince 1st semester leave in March 2010, as you know school teachers are not caring enough.
I have complained to the Medical Board Council ( MMC ) on 31st Dec,2009. and they have close the case without hearing my allegation of my complaint.
I am still seeking the best lawyer to sue the irresponsible doctor.

Hi... I was in melaka just visiting as I bored staying in so many hospitals... Melaka best with my twin brothers

To reconstruct her hand estimated about RM 35 to 55K.

Quotation available from the hospital

I am pleading to the public who can help me financially.

Please help.

Hi am Nur Aqeelah;

I need to go school and it is March now,

I supposely should in school for UPSR exam this year.

This is the surau staircase where she fell down in school

This picture was taken in Pantai Medical before the Ops

New

Today, her five fingers have been amputed in Pantai Medical Centre because to remove the dead tissue on her hand ( gangrene ).

Her photos of her fingers which have been amputed today.

Her condition now;

1 ) Her vision improved 50 %
2 ) Her hand needs to re-constructed which we couldn’t do it in India due to financial
constraint INR 350,000 ( >RM 30,000 ) and had to stay for 3 months.

( Quotation available from Apollo Hospital - India )
3 ) Her brain condition has improved based on her IQ test.
4 ) Her “stent” on her chest unable to do by pass because the stent done here was
wrongly implanted. The stent was in a curve shape to the main artery.

The doctors in India as assured of their support in ensuring a successful operation which is scheduled in a six months time. We need to go back for follow up on the stenting later.

Her eyes after the operation.

She unable to open her eyes

so, she have to use her hand to open her eyes

News update

She already come back home on Monday.

This Friday, she will be warded in Pantai Medical Centre to do a surgery on her hand
and follow up with Pysiotherapy.

Estimated cost RM 8,000++

News update

Due to insufficient monetary fund, I may have to call her back to home land.

I have tried many avenues to get some fund but in vain. The monetary fund was not enough to bare all the cost at the moment.

I might send her to Pantai Medical for re-constructing her hand and awaiting her to come back home in order we get the quotation from our local doctor.

Next update on 16th Feb

New

She having a treatment in Apollo Hospital ( Chennai )

1 ) Her eye sight has improved 50 % clear vission and will improve within two - three weeks
2 ) Her behaviour also improved towards maturity ( Brain )
3 ) Her hand to re-construct, unable to do it due to financial constraint RS350,000 ( > RM30,000)
4 ) Her stent on her left arm / chest still no blood flow and the doctor has given a report
on why the stent can't be distrub at this moment.

Hope the Almight will help her during her stay in hospital.

Next update 16th Feb.

News on contributor and help rendered

Below are the generous contributors, who had scarifies their time to collect on behalf of me and those who have bankin directly to my account.

"Where there is a will, always there is a way !!"

Special Thanks to TV3 who have aired / broadcast my story on the date as follows;

25th & 26th Dec, 2009 by Mr Jaffry ( Prime news )
23rd Jan, 2010 by Ms Nurul Huda ( MHI )

And also special thanks to Mr K.Sivanesan of Malaysian Nanban for publising my news on the paper.

From ITSC DHL Cyberjaya , DHL Express , Relatives and Friends.

1 ) Manglore Sudesh Hedge
2 ) Anirban Kundu
3 ) Mohinder Singh A/L Haralp
4 ) Bheesma Maddipoti
5 ) Hu Heng Siew
6 ) Zakaria Ahmad
7 ) Lee Wei Kuen
8 ) Zul Shamer ( Dubai )
9 ) Ms Bibi Khatijah M. Anwar
10 ) Zurina Binti Sahmer
11 ) Tan Huat Min
12 ) Tong Seow Nee
13 ) Chong Kok Leong
14 ) Khoo Chin Soon
15 ) Sukhdev Kaur ( DHL Sales dept )
16 ) Yvonne Tan ( ITSC )
17 ) S. Parameswaran Maniam ( ITSC )
18 ) DHL ITSC and HOD of BIT Dept Cyberjaya & HR
20 ) Pustaka Mukmin ( Hj. Ishaq )
21 ) Untie Miriam Marchuk and Ryan Marchuk – ( Canada )
22 ) Uncle Michael – ( Tokyo Japan )
23 ) Indra Ghandi – DHL SZB ( Subang )
24 ) Ismail ( Punchak Perdana )
25 ) Baharuddin ( Penang )
26 ) Zarina of Virtual Calibre Sdn. Bhd.
27 ) Khalid Ali of Virtual Calibre Sdn Bhd.
28 ) Suguneswary of Virtual Calibre Sdn. Bhd.
29 ) DHL Security dept HOD – Mr Roslan Yacob
30 ) DHL QCC staff and HOD - Mr Eugene Chau
31 ) Faizal of Shah Alam
32 ) Sugu ( DHL Singapore )
33 ) Patricia Wong
34 ) Agnes ( Menara Axis ) and Shaun DHL traffic Menara TM
35 ) Maheswaran ( ITSC )
36 ) Jasheer ( Penang )
37 ) The Management of HSS Intergrated and staff ( Taman Permaisuri )
38 ) Seeni Abdul Kadir ( Rawang )
39 ) Karthoon Sharifah ( Putrajaya )
40 ) Ubaidullah Company
41 ) Kamarulzaman ( Restaurant Baiduri )
42 ) DHL Nat Ops Group
43 ) Dr. Ganeson of Klinik Seri Melawati
44 ) Soosai Dass ( Ex staff Dhl ) of AYJ Courier Service
45 ) DHL Express IT ( Menara TM ) Sree , Arjunan and staff
46 ) Mr Ibrahim of Miak Trading Sdn. Bhd.
47 ) Mr Fidhaullah of Nambikkai Magazine'
48 ) Mr Abdullah of Hat Logistics
49 ) Mr. Sahibudeen & Mr. Abdul Sathar
50 ) Dr. Sheikh Rasool of Menara TM Medical Centre
51 ) Ustaz Abdullah of Masjid India K.L
52 ) Rashidah Aziz ( Standard Chartered )
53 ) Fatimah Syed Mohd
54 ) Bashir Ahmad
55 ) Zam-Zam Food & Industry ( Staff and Management )
56 ) Dato' Sadiq ( Kedah )
57 ) Saras, Dass & Rasathi ( Taman Melawati )
58 ) Begum ( Wangsa Melawati )
59 ) Aishah Bee ( Ampang )
60 ) Kathy and Dr. Ebrahim ( Klinik Ebrahim )

News update

We have to send her to Trichy ( India ) due to affordable the amount RM 19,000 so far we have managed to collect and also we have to manage lodging, food, tranposrt and medical treatment

Due to my financial difficulties, I had to send my daughter to Thrichy of ABC Hospital. The doctor had examinated her and later the doctor had given a referral letter to go to Apollo Hospital in Chennai and this is due to the complication and a blunder done by our local doctor. The stenting on her chest was not done properly and that's why she having pain due to low blood flow supplying to her hand.

I was hoping very much that doctor in Thricy, would able to treat her due to my ability to support financially and now I am facing more financial difficulties as I have no choice because the experts in Apollo has a best vascular doctor and also they have the latest mordern equipment

News update

Today, 23rd Jan, she has left to India together with her mother for treatment.

Hope to hear good news .....

Will update on next week 6st Feb.

Update this week

She have gone for oxygen treatment about 40 session and the cost RM 20,000 as for today.

Last week we have done CT Scan in Assunta because she was suffering pain and we found the stenting on her arm was blocked " no blood flow" . We are afraid she might have constant pain for longer run due to stent was over her neck rib.

This week she will depart to India for treatment for;

1 ) Eyes vision is blur and double vision

2 ) Stenting on her arm to remove and to do By-pass

3 ) Her left hand which under go for micro surgery ( reconstruct )

4 ) Her brain has to scan again ( MRI ) to see how much has been damaged due stroke


So far, have collected RM 12,368 . The admission fee alone in India cost RM 10,000.

We are still seeking more donation.