Please Help Me

Hi, I am Ayub Khan from Kuala Lumpur, Malaysia age 45 working as a despatch. My purpose of setting up this blog is to send out an appeal to whoever is reading this for HELP to save my 13 years old daughter Nur Aqueelah whom I loved much for an urgent surgery for Thoracic Outlet Syndrome.

This is the story of what happened and why I am in desperation seeking financial HELP openly with much humility.

On 5^th Oct 2009 my daughter Nur Aqueelah who was once a very active girl in school participating in Karate, Swimming, and tournaments has become her past after an unexpected accident happened when she was pushed down from this stair case (above) in her school’s surau. 
Never in my wildest dream had I expected the fall could cause her a dramatic future of her life due to the negligence of medical doctor, which was reported in the local prime time national news in TV3


This is how it all happened…………..and the series of events that led her to her present condition of her hand and life that has even cause her losing her memory.  

I am seeking financial help in order to receive treatment for my daughter, Aqeelah, in India this coming November 2011. I have sought help from various doctors in Kuala Lumpur:- from Hospital University Kebangsaan Malaysia, General Hospital Kuala Lumpur, University Hospital Malaysia and Assunta Hospital and few private hospitals to receive proper treatment for my daughter’s hand which had become gangrenous.  
Over a 1 week period, 3 operations were performed in a prestigious hospital in Ampang, Kuala Lumpur.  The result was gangrene in her left hand and we have lost faith on that hospital which is suppose to be the best hospital in Kuala Lumpur, Malaysia.

The fall did not seem serious at first, but later she complained of numbness and a burning sensation in her hand.  She was crying and complaining about the pain in her hand. We took her to a clinic and they prescribed medicine for the pain.  The medicine did not help so we took her to a private hospital where they did an x-ray. No fracture was found and they also gave her more medicine. 
I was still not satisfied, so I took her to another hospital.  CT scan was performed, and they found a blood clot in her forearm.  An operation was done to remove the clot, but there were further complications. There was no pulse in her arm so they performed a second operation. It was after the second operation that the gangrene first appeared.

The blood was still not flowing, as it should so they decided to put in a stent (an artificial 'tube'). During this third operation, Aqeelah suffered a stroke. She was in ICU for 8 days; she was unable to eat, walk, speak or see properly and her behavior became childlike.  At this point a doctor recommended we amputate her hand to stop the gangrene from spreading. We were loath to do this and, therefore, sought alternative treatment.

Upon discharge from the hospital, 22 days later, she was still unable to walk and her speech was still impaired.  As a last resort to save her hand from the gangrene, we gave her treatment in a hyperbaric chamber (below) in Ampwalk Mall Clinic. After 5 treatments, she was able to walk, but she still had behavior problems.  The treatment arrested the gangrene, but for full recovery the doctor prescribed hyperbaric treatment everyday.  Unfortunately, we could only afford to send her for treatment 3 times a week and completed 40 sessions in all. Her speech and motor skills improved, and her behavior somewhat improved as well.  The doctor advised us to do another 40 sessions, but we could not afford this either.

Our next option was to seek treatment in India. Further scans were done to discover why the circulation in her forearm was impeded and the gangrene set in. An MRI was also done to see why she couldn’t focus her eyes; they prescribed medicine for this condition. In the doctor’s opinion, amputation of the thumb and fingers was necessary, and he quoted the cost as INR 350k The doctor suggested a return visit to India for further treatment.

We couldn’t afford the cost in India, so we returned to Malaysia to have the operation done.  In K.L. we consulted a specialist who completed the operation.  She had half of her thumb, index finger, and middle finger removed, as well as the tips of her ring and baby finger. She is recovering nicely, but now needs reconstruction surgery and cost about RM 60,000 to 80,000 in Pantai Hospital.

As mentioned before, we are not in a financial position to give our daughter the required treatment.  Of course, as loving parents, we are heartsick about our own inability to help our daughter receive the best treatment available.  We all pray that funds, either through donation from family, friends or compassionate strangers will help us realize the best treatment and result for our dear child.

Here is a brief summary of the expenses we have incurred so far:

1^st Treatment:  hospital in Ampang – RM 54,000

2^nd Treatment: clinic Ibrahim in AmpWalk Mall – RM 16,000 ( tel : 603-21632469 )
        ( Hyperbaric Chamber treatment )

3^rd Treatment:  leach and acupuncture treatment in Pandan – RM 1,600

4^th Treatment: further medical examination-RM 3,500

5^th Treatment: eye check-up in Ampang Puteri  hospital – RM 600

6^th Treatment:  overall previous treatment in India and travel costs – RM 16,000

My financial resources have been exhausted, so we are now hoping for donations of up to  RM 250,000 in order to go back to hospital for follow up treatment to remove the stent on her arm a do bypass surgery and also another surgery to reconstruct her fingers and thumb which were partially amputated in K.L. Some doctors recommended to go to Singapore ( Mount Elizabeth Hospital ) because they have the best solutions for her thumb transplant surgery.So, I am in midst of preparing for the expanses and its worries me as well, and how much would be cost still puzzle to me.

I have no choice that I have got to sell my house which we are currently staying, so that, I can pay up my debts with people whom I borrowed for buying medicines for my daughter and others expenses that occurred. Nevertheless, I still owed the bank on the property, which is worrying me often. Below is the add on the paper and bank statement. I cannot afford to purchase medicine and medication for my daughter.

My Appeal

My daughter need urgent surgery for Thorasic Oulet Syndrome whereby the cost of operation we cannot afford for her to go ahead.

Why? Because so many surgery to take place;

1) Need to do brain surgery due to infraction on cerebellum and cerebral palsy (that’s why she is becoming childlike if see on her behavior) to remove blood clot due to stroke in her brain.

2) To reconstruct her hand by cutting one of her toe and transplant on her index thumb finger.

3) Surgery on her skin (hand) engraving to remove the blackish spot of gangrene. (dead tissues)

4) Surgery on her eye for better vision.

5) Plastic surgery on the three fingers.

6) Need to remove the stent which was implanted on her arm and do by pass without cutting the rib (TOS) Thoracic Outlet Syndrome which is urgent now.

 

Total cost estimated above RM 250,000.

My humble appeal with humility to the noble and kind hearted to help us with your generous contribution to save my daughter and for her future to live well. Any amount will made a great different, even its $10. I am praying and doing everything I can to reach out to the world with my humble appeal for any generous contribution to give back the life to my daughter whom I loved much.  

You may call me Ayub Khan at +6013-3106262 or
You can bank into my Maybank account 114301491750 (Ayub Khan Abdul Majid)
Paypal account:  a_khan313@yahoo.com

I would be very grateful and appreciate if some one could help me during this needy time and my situation is helpless. Hope Allah bless every single dollar donated and with this will gives me a guide to achieve my aim to heal my daughter’s hand and her brain to make her come back (recovery) after the stroke and as well for her eye which her vision is blur now.

Thank You and Wassalam.

May the ALLAH Bless Your Generosity.

Ayub Khan Abdul Majid

+6013-310 6262
Maybank account:  114301491750
Paypal account:  a_khan313@yahoo.com

Her condition during discharge from the hospital :

1 ) She not able to walk alone – on wheel chair ( imbalance, need our support to toilet and so forth )

2 ) Behavior have changed to 6 year old kid due to impacted the brain “damaged”

3 ) Always talk to same words ( repeated )

4 ) Cannot open her eyes , eye ball not in the positioning and unable to focus the object and blur in vision.

We took her to Hyperbaric Chamber Treatment after discharged fm hospital on our own accord.

Follow up treatment : Hyperbaric Chamber for the brain in Ampwalk Ampang
Per session Rm 500 x 40 days( session ) = Rm 20,000.

This is after 2nd operation photo, founds whereby the pulse ( nadi ) was not there after the 1^st operation. ( 1^st mistake identified )

She couldn’t stand the pain and cry the whole night

 

The colour of the hand changing, was known due to no blood and oxygen flow into her fingers and started becoming black which called early stage of gangrene.

 

To reconstruct her hand estimated about RM 55- 75k.

quotation available from the hospital

The story behind of the massacre of the hospitals and the trauma that we faced are unforgettable memories

Name : Nur Aqeelah Bte Ayub Khan
Age : 11 years –( 2009 )
Weight : 53 kg
School : Taman Melawati, Darjah 5
Active in sports : Karate , School tournament, Swimming and etc

She fell at surau stair case of the school due to people push her down and she suffered some pain, numbness , burning sensation and irritation after consulted few doctors before we went to the 2nd Private Hospitals

Fell on 5th and 6th Oct 2009, went to normal clinic, a GP Doctor and gave some medicine. She claim only have pain on her hand and the pain was still persist after many medicines.

1st Private Hospital – out patient attention

On 9th Oct, went to 1st Private Hospital and had taken x-ray and the doctor confirmed nothing was broken to her arm / hand and the orthopedic doctor just gave her medicine for 10 days and requested to come back again.

On 13th Oct 2009, went back to the 1st Private Hospital again, and we found the orthopedic doctor was on leave and was referred to another doctor on that day. The doctor examined her hand and was given stronger pain killer but he said if still have the pain it would better get warded in another hospital whom she maybe needed to refer to a vascular surgeon and currently this hospital does not have any that kind of surgeon. She keep on complaining the same trend of pain but the doctor didn't warded her because request me to get warded to different hospital because he said she needs a vascular surgeon attention.

2nd Private Hospital

Day 1.
So, we went to another Private Hospital on 14th Oct which very well known and the best hospital in the city.

On 14th Oct : Doctor have taken blood samples, ECG, and also had taken CT scan and the hand was Ok, she can turn and grip.

14th Oct - Surgery was done and removed the blood clot and then after 1 ½ hour of the surgery doctor came to the ward to check her hand and found there was NO PULSE on her hand.
Doctor rush back to operation theater and did another operation on her hand again.

Day 2
15h Oct - Doctor was monitoring her hand temperature and we had taken a picture on her hand while she was awake.

Day 3
16th Oct - Doctor said she needs to undergo another surgery at her upper limb because she was having a Thoracic Outlet Syndrome ( TOS ) which she was born with it. And doctor advised that she needed to put a stent for better blood flow from main artery.
She was suffering with very severe pain on that day and crying for help and we couldn’t stand her cry.
At 6:20pm she went for surgery and the doctor have implant the stent on her arm and I was relived the she would be ok from now onwards. Then more worsen to foresee to happen !…

Symptom after the surgery;

- Her wrist was swollen after the surgery

Day 4
17th Oct 2009, her hand turned into more blackish and spread all over of hand and she didn’t wake up at all.
Called the doctor and he said normally will take 24 or 48 hrs to wake up but we foresee she had abnormal
movement ( like fits ) but she couldn't talk or open her eyes. She sent signal by hitting the bed none stop the whole day and we don’t know why until Monday 19th Oct, then we know why and funny part the doctor also don’t know why she hitting the bed ( fits ).

Day 5
18th Oct her hand getting worsen buy turning to blackish and she couldn’t wake up from anastatic drowsiness.

Day 6
19th Oct - she didn't open her eyes or talk but her right leg have abnormal movement but her hand was getting colder.
- She was sent to do MRI scan in the morning and later in the afternoon was announced that she had a stroke in brain and she went to coma for 8 days and was warded in ICU.
Her finger tips become worsen and pronounced " gangrene ".

25th Oct 2009 - She able to say a few words only but she couldn't open her eyes.

26th Oct 2009  - Went for mouth therapy for 2 days

29th Oct 2009 - Went for physiotherapy 2 times a day in hospital until 4th Nov.

4th Nov 2009 - She was discharged on doctor's will with the condition of her as per below losing her memory;

Need your support -2011

She needs above RM65-75K for her operation in india, whereas in Kuala Lumpur is very expensive and it is above RM150K.

1 ) Needs to do surgery on her brain "remove blood cloth" due to stroke in brain
( behaviour changed )
2 ) Need to do eye surgery ( one eye only )

3 ) Need to do reconstruct her hand ( plastic surgery )

Hoping your goodwill to sponsor and support her for her medical treatment thus will make her happy and speedy recovery.

Pls support my daughter for recovery.

Thanks
Ayub

May update

This how my hand look today.

Aqeelah says:

This is how myself today and I can't open my left eyes well and I can't see well too and all my fingers short due to amputed recently because of gangerene.

I can't go for swimming, karate or any sports now but going to school.

Aqeelah - Once a upon time where she used to be healthy young kid.

This picture was taken before the operation as you can see her eyes was OK .. Today, her one eye is blur vision.
Today, she need fund around RM 70 -RM 80K to do plastic surgery ( reconstruct ) for all the five fingers and also her one of the eyes sight vision is blur need to put on a spectical glass.
She is now going to school eversince 1st semester leave in March 2010, as you know school teachers are not caring enough.
I have complained to the Medical Board Council ( MMC ) on 31st Dec,2009. and they have close the case without hearing my allegation of my complaint.
I am still seeking the best lawyer to sue the irresponsible doctor.